By e-mail of course, and not here because Boris the crazy violinist (the one who lives with 17 cats,) is trying to send me his Viagara recipes again.

Oy-vey.

Or is it Oi-vay?

Oil of Olay- vey?

Jannie Funsters last blog post..Song Quest Two

Say I lost your email address in all my computer internet complications and I did not find it on your blog…could you send this IT illiterate person it again? I would like to have it…

Thank you so much my dear friend

And I’d insist such paperwork contain not so much as a hint of a soupson of a whiff of a mention of a muffin – fresh, stale, hard as a rock, green with mold or otherwise.

Whoops, sorry to mention muffin here.

Patricia, thank you for being my friend. Your comments mean much more than you could ever know.

Jannie Funsters last blog post..Song Quest Two

Most folks give through the largest “Children’s Hospital” in their state

Operation Smile is the overseas donation group where all the movie stars do ads for them and make big donations.

University of Washington has done the most work on the brain lesions that often go hand and hand with a cleft palate….and that research is parent supported.

Just about every plastic surgeon I know will get the money to the correct place within your state. (Not the weirdos and crooks, but the legit ones!)

Thank you for asking

In one my posts, I wrote about my battle to get private health insurance as I was getting a divorce and would be removed from my husband’s group plan. It wasn’t a nice experience and taught me things I didn’t want to know about insurance in the USA. But my situation is nothing compared to health care for children!

Can you leave a site where we can either voice our concern or make donations to help regarding coverage for cleft palate repair? Thanks for the post:~)

Saras last blog post..More than just 5 words in a journal

Vered,
Yep exciting news and extremely high taxes and certainly not a perfect system. As a small business owner in the US, we pay giant amounts of taxes for schools, public transportation, libraries, public services and health care, etc. Then we have paid every penny of our child’s needs – medical and academic. Once a nice doctor after performing a 30,000$ surgery and the insurance company paid him $4,000 turned around and only charged us $1. Cleft palates are not considered a disability so we could have gotten divorced and she and I go on welfare to get her medications covered or we could pay every penny.
My only guilt is that we short changed out other daughter’s educations….then you add sexism to their lives – I can’t even go there.

Mark,
It is a great discovery and deserves a shout out.

Dot,
I just want to keep this information out in the world. I sure hope the powers that be can help fix our health care system, I am hopeful.
I keep attempting to be a noisy gong, but I sure do want to say thank you to the people of the UK and France for putting their tax dollars into this research. And say thank you for all of the people who do not know – yet!

I think as a people we need to keep telling out stories and then more people will know…and up will come the shouts of a joyful noise that resolution is at hand – a mighty army was brought to their knee with one word.

Thank you for telling your story here. Good recovery to you

Tony Single,
It is just impossible to know all there is to know, but being aware and as knowledgeable as one can be is so important so that one does not loose a good thing. When we get complacent then we stand to loose a good thing. Laughing is not being complacent – so keep us laughing good soul.

Wow a whole world with out cleft palates….would that not be amazing! and a healthy sign?

I must admit that I had not really come across the whole cleft palate issue before reading this, Patricia. Thank you for educating me.

Tony Singles last blog post..An Affair to Forget [Trottersville #115]

In answer to your questions, I was diagnosed with lupus, a very unglamorous disease, in 1990. (The diagnosis was later changed.) I had heard of lupus but had no idea what it was. I discovered that people I talked to generally either didn’t know what it was or confused it with leukeumia.

There are two national lupus organizations (instead of one, which would be more powerful). Eventually they began an awareness campaign telling people that lupus was more common than AIDS, sickle cell anemia and a bunch of other, more well-known, diseases. Lupus patients are 90% women, which may also explain why awareness is so low — sexism.

Since I have little energy, due to another illness, I don’t personally fight with the insurance company. The place where I work has a designated representative for that, and if she can’t get results, I turn to the doctor. My main doctor for this is very good at knowing what the insurance company wants. If he also fails, I just skip it. I don’t want to spend my precious energy on disputes, even if it means I have to pay more.

Health care reform is desperately needed, in my opinion, here in the U.S. Yes, doctors are being short-changed right now. However, a person’s life should not depend on whether they have enough money to be saved.

Dots last blog post..Under the Weather